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SMAAA Ride for Life
SMAAA Ride for Life
Story
I'm riding from Sydney to Brisbane over 9 days between August 1-9, 2009 to raise money and awareness of Spinal Muscular Atrophy.
I, like many others had never heard of SMA until my mate Peter Wright's daughter Amelia was diagnosed with the condition.
SMA is disease that requires family's of sufferers to spend huge amounts of money on highly specialised equipment to make the lives of their children as comfortable as they possibly can be. Of course, some families are not in a financial position to provide the best equipment for their children and it's those families we are hoping to help with this ride.
Any financial contribution sponsors can make towards the cause of the ride is greatly appreciated!! Please give generously.
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Spinal Muscular Atrophy Association of Australia Inc
The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy. As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. Spinal Muscular Atrophy is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage. This wastage of muscles not only affectes the sufferes external muscles like arms and legs, but all their internal muscles like breathing, coughing and swallowing. The Associations Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.
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