- Raised So Far
- $130,108.50
- Help us raise vital funds
JL's SMA Bike For Life
Hi
In early August I'm joining a small but dedicated group of people riding our road bikes from Sydney to Brisbane to help raise money and awarenenss for the Spinal Muscular Atrophy Association of Australia.
We're travelling about 1066km across 9 days from August 1st to August 9th 2009. We hope to raise both money and awareness for this wonderful charity.
Your donation is gratefully accepted either through this website, or can be made through the SMAA Website ( www.smaaustralia.com ).
For a more detailed explanation of SMA and the valuable services and support offered by SMAA, please visit the SMA website - http://www.smaaustralia.com/
Additional Pledges not included in this page from direct donations are...
David and Sandra Leyshon (Mum and Dad) - $100
Janet and Stephen Fulton - $100
GCRE (Gold Coast Real Estate) - $500
Glenn Eades - $30
Simone and Michael Vidler from Dynamic Door Service - $1/km - should be approx $1100 if I decide not to do the return leg ;-)
Thanks for these wonderful donations and for your assistance
JL
Spinal Muscular Atrophy Association of Australia Inc
The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy. As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. SMA is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage. The SMAAA Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.
