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Sydney to Brisbane Bike Ride
Peter Martin
Sydney to Brisbane Bike Ride
Story
The generosity of people so far has been impressive and including direct deposits and cash I have just pushed above the $6,000 mark in donations! Although a portion of that is per km so I need to make it to Brisbane before it is locked in!
I thank you for your support for kids with SMA and sponsoring me on the ride.
In August I will riding from Sydney to Brisbane to raise funds and awareness for Spinal Muscular Atrophy (SMA). The ride will commence from Sydney on Saturday August 1st and finish at Easts Leagues Club in Brisbane on Sunday August 9th (itinerary attached for those who are interested).
One of my good mates Peter Wright has organised the ride as his daughter Amelia has SMA, Type II. Despite an original diagnosis which gave her a life expectancy of 5-7 years, after much research and contact with specialists in Australia and abroad, there is much more to hope for from life for Amelia and her family.
Our primary aim is to raise funds for families that are not in to position to provide the basic equipment such as wheelchairs, standing frames, seating systems, bath chairs, toilet seating, physiotherapy, breathing-assist equipment, special assistance at school and computer assisted learning technology to name but a few. Our secondary aim is to raise awareness of SMA and fight for a cure.
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Spinal Muscular Atrophy Association of Australia Inc
The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy. As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. Spinal Muscular Atrophy is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage. This wastage of muscles not only affectes the sufferes external muscles like arms and legs, but all their internal muscles like breathing, coughing and swallowing. The Associations Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.
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