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John Leyshon

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JL's SMA Bike For Life

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Hi

In early August I'm joining a small but dedicated group of people riding our road bikes from Sydney to Brisbane to help raise money and awarenenss for the Spinal Muscular Atrophy Association of Australia.

 

We're travelling about 1066km across 9 days from August 1st to August 9th 2009. We hope to raise both money and awareness for this wonderful charity.

 

Your donation is gratefully accepted either through this website, or can be made through the SMAA Website ( www.smaaustralia.com ).

 

For a more detailed explanation of SMA and the valuable services and support offered by SMAA, please visit the SMA website - http://www.smaaustralia.com/

 

Additional Pledges not included in this page from direct donations are...

 

David and Sandra Leyshon (Mum and Dad) - $100

Janet and Stephen Fulton - $100

GCRE (Gold Coast Real Estate) - $500

Glenn Eades - $30

Simone and Michael Vidler from Dynamic Door Service - $1/km - should be approx $1100 if I decide not to do the return leg ;-)

 

Thanks for these wonderful donations and for your assistance

JL 

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Spinal Muscular Atrophy Association of Australia Inc

The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy.  As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. Spinal Muscular Atrophy is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage.  This wastage of muscles not only affectes the sufferes external muscles like arms and legs, but all their internal muscles like breathing, coughing and swallowing. The  Associations Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.

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